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I would like to thank the CSRF for keeping in touch with your newsletter; it is very comforting. My story is like many others. My symptoms started in 1996 and I was not diagnosed until 1999. I had a left adrenal tumor and a 2 inch cyst grew in my left ovary in just 2 months. I had my left adrenal gland and left ovary removed in June 1999.
I had all the symptoms, except diabetes, including obesity, fatigue, high blood pressure, cessation in menstrual cycles, numerous broken bones in both feet and 4 broken ribs on my left side and 2 on the right. By the time I was diagnosed, I thought I was going to die without knowing what was wrong.
Since surgery, I am doing much better! I am no longer on prednisone or florinef. I feel very lucky and blessed and I value each day with my sons, ages 14 and 8. But, it seems the Cushing's did some permanent damage to my psychological stability and left me with chromic pain due to multiple spinal disc degeneration and arthritic pain due to fractures. I really hate complaining, but I do want to mention that I've had two other surgeries since my Cushing's. I had a cervical disc fusion done in 2001 and a total hysterectomy with bladder suspension in 2002. My future probably holds more surgery on more cervical and lumbar discs. I still feel I am one of the lucky ones!! I would greatly like to hear from others, particularly those with back pain and would be more than happy to help support others. God Bless! |
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