home
home


    


Quick Links



comment on this page | email this page | print friendly |


Click here to contact this member
I am the luckiest man alive. I'm writing this letter after almost losing my life. Cushing's has changed me as a person. My life will never be the same. I had Cushing's for 8 years before I was diagnosed. I knew there was something wrong, but my GP said I wasn't taking care of myself. Not exercising enough or eating right. The first part of my body that was affected was my eye site. I am one of the few who have lost site from Cushing's. I was ill all the time, cold's, flu, anything in the air, I would catch it. I put on 50 lbs. In my face and abdomen. My blood pressure was 145 over 110.

Finally, I could not walk and went to an old doctor I knew. He is an orthopedic surgeon. He took x-rays and found I had multiple fractures throughout my legs. He then sent me to a rheumatologist, where I was diagnosed. After dozens of doctors - finally! I had a pituitary tumor. But the damage was already done - I have loss of site in my left eye, Avascular Necrosis, Osteoporosis, Osteoarthritis and have had 5 major surgeries (left hip replacement, left wrist, tumor surgery and 2 left foot surgeries). I am still on many medications but have my life back after 3 years of not knowing what my future would be. I am back to work, in the gym and love to play golf! I hope I can help support or give someone hope. Thanks for the opportunity to tell my story.

  Click here to follow us on facebook
© copyright , CSRF - 60 Robbins Rd, #12 - Plymouth, MA 02360 | email us | site map | make a donation
About the CSRF | Mission | Board of Directors | Medical Advisory Board | Conference Reports | Public Awareness | News and Events | Our Sponsors | Memberships and Donations | Email Us
About Cushing's | The Basics | Fact Sheet | Testing | Glossary | Adrenal Cancer | Pedriatic Cushing's | Current Research | Other Resources | Cushing's Doctors | For Medical Professionals
Coping with Cushing's | Doctor's Articles | Doctor's Answers | Articles on Coping with Cushing's | Helpful Hints by Cushing’s Patients | Patient Stories | Patients to Contact
Member Services | Become a Member | Main Area | Update Your Profile | Email Other Members
>