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It has been approximately 10 years since I found out I have a left adrenal tumor. Since I was seeing an Endocrinologist for hypothyroidism, he agreed to treat me for Cushing's. As far as I know, he is doing a good job checking me every 3-4 months with tests to make sure the tumor is not growing or secreting. I'm not into all the medical terminology as the people I read about in the newsletter. I do feel isolated and try not to let myself become depressed over the way I feel and how I look.
Most of the people who write to the newsletter have pituitary tumors, where I am interested in hearing from someone with an adrenal tumor. I am curious on what determines if they had surgery to remove the tumor since my doctor seems to feel "as long as it's not doing anything, surgery isn't necessary." I feel if I did have the surgery, I would feel better and lose some of the weight, which makes me extremely uncomfortable. A big part of my discomfort is stomach problems, which seem almost constant.
I'm 60 years old, but don't feel old except for this condition. I want to be able to enjoy the rest of my life with my husband who has been a tremendous support. He is extremely understanding and I don't know how I could deal with this without him. Again, I would love to hear from others who have had adrenal tumors removed, or anyone else in my situation.
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