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I am not sure how I got on your distribution list, but I would like to say "Thank You". I just wish that when I was sick, I would have had a support group like this one. Both my husband and I read the newsletters and just shake our heads, so many stories sound just like mine.
I was diagnosed with Cushing's of my left adrenal gland in January, 1993 at the age of 44. For four years, I complained about easy bruising, thin skin, weight gain, nervousness, rapid heart beat, and high blood pressure, to a point where I actually thought I was imagining my symptoms. Then I went to a new HMO, and it turned out that the doctor had treated me a few years back for an unrelated problem. She remembered me and immediately knew something was different about my appearance. I used to be small, about 110 lbs., but now my face and belly were really big and fat. My blood pressure was so high, it was hard to control even with various types of blood pressure medicines each day.
My new HMO doctor sent me to a wonderful endocrinologist. She ran numerous 24 hour urine tests. The results showed that I had high levels of two hormones, possibly indicating two tumors. After many, many more tests, they finally did surgery March 17, 1993. The surgery was a success.
After surgery, I too had trouble adjusting to the hydrocortisone. I thought I was going to die!!! Up....down.....crying....not eating. I thought that after surgery it would be a breeze. Boy was I wrong!!!
Four years later I'm completely cured from Cushing's. From my body having all the steroids, I now have severe osteoporosis for which I take Fosamax. I'm still on blood pressure medicine and my thyroid is still underactive, but all in all, I feel great!
My words of advise to all Cushing's and recovering Cushing's patients, BE PATIENT AND HAVE TRUST IN YOURSELF. THINK POSITIVE. I believed that I was going to be all right and I was. I still have aches and pains, but I attribute that to just getting old!!!! |
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