home      About the CSRF Mission Board of Directors Medical Advisory Board Conference Reports Public Awareness In the media You can help! News and Events Our Sponsors Memberships and Donations Email Us About Cushing's The Basics Fact Sheet Testing Glossary Adrenal cancer Pedriatic Cushing's Current Research Other Resources Cushing's Doctors Endocrinologists Neurosurgeons International Laporscopic Adrenal Surgeons For Medical Professionals Coping with Cushing's Doctor's Articles Doctor's Answers Articles on Coping with Cushings Helpful Hints by Cushing’s Patients Patient Stories Patients to Contact Member Services Become A Member Main Area Update Your Profile Email Other members Coping with Cushings Doctor's Articles Doctor's Answers Helpful Hints by many CSRF members Articles on Coping with Cushings Patient Stories Patients to Contact Quick Links I think I have Cushing's Make a donation Join our mailing list Email Us Code: 823 Date: Fall, 2002 comment on this page | email this page | print friendly | Click here to contact this member My Cushing's diagnosis came about eight years after I started feeling sick. In 1997, because of a change in insurance, I saw a new doctor. He got suspicious and sent me to an endocrinologist. Testing came back positive and an MRI located the adrenal tumor. A friend looked up Cushing's online and showed me several pages of information. Cushing's was responsible for EVERYTHING I was dealing with for so long! My surgery was in December of 1997. My recovery was rough. My doctors didn't prepare me for what was going to happen; I was only the fourth Cushing's patient treated by the specialist. So I leaned heavily on other members of CSRF. I truly believe I would have been swallowed up in the swamps of despair if I had not heard about CSRF and the wonderful people who were willing to help. On in particular emailed me almost every day for months (Jane, you know I'm talking about you!) I had difficulty focusing, cried a lot, and had horrible headaches. I was treated by a neurologist who gave me two drugs to ease the headaches and help with depression. If you have depression, tell your doctor because it can help get you through. Now it's four years since my surgery. My Cushing's is gone! I still have trouble with my short-term memory but I just say, "that's not part of my memory right now" and let it go! My doctor told me that the massive amounts of cortical steroid was actually "treating" a problem that I didn't know was there. I have severe degenerative arthritis. It's rather complicated. A doctor tried several sessions of steroid injections into my back and warned me that the steroids would put my left adrenal gland into shutdown again. I still have sciatica pain that runs down the back of both of my legs. It's recommended that I have a spinal fusion. For now, I take things easy, take one day at a time, and don't overdo it. I enjoy my release from the hold that Cushing's had on me for so many years. I'd love to hear from anyone who wants to talk. I respond most quickly and easily by email.

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About the CSRF | Mission | Board of Directors | Medical Advisory Board | Conference Reports | Public Awareness | News and Events | Our Sponsors | Memberships and Donations | Email Us

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